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Fragile X Syndrome

Being a parent is hard work. But, finding out your child has a medical condition increases the struggle tenfold. First, there’s shock. Then, your mind starts reeling with so many questions. What does it mean? How did it happen? What does treatment involve? How will this affect my child? Such is the case with rare…

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Fragile X Syndrome

Cystic Fibrosis (CF)

Most people take breathing for granted. It’s something that’s done automatically, and it’s practically not thought about — until someone has difficulties bringing air into their lungs. Such is the case with cystic fibrosis. Getting a diagnosis can be terrifying, but with proper management and lifestyle changes, you can have as normal a life as…

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Cystic Fibrosis

Lennox-Gastaut Syndrome (LGS)

As a parent, you do whatever needs to get done to ensure your child’s welfare — a loving home, food, and a safe environment. But no matter how hard you try, some things may be out of your control — such as when you receive a medical diagnosis. The experience can feel even more overwhelming…

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Lennox-Gastaut Syndrome

Pediatric Home Care Tips for Ventilator Dependent Children

Finding out your child needs a ventilator to breathe properly is crushing. Here’s your little baby — regardless of age, they’re always your baby — requiring assistance to do one of the most vital functions. So when it’s time to take your little one home, you may be wondering how to make sure everything goes smoothly. Do…

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Pediatric Home Care Tips for Ventilator Dependent Children

CPAP Therapy 

One of the most important things a person can do on a regular basis to be well-rested and alert is to get a good night’s sleep. Yet, in many instances, it can be easier said than done. Small children, insomnia, stress at work, and financial worries can all play a role in keeping you up…

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CPAP Therapy

Abdominal Compartment Syndrome (ACS) in Children

Children are often known for their care-free attitudes and carelessness – resulting in bumps, bruises, scrapes, and other injuries. While minor boo-boos can be turned into little life lessons, major accidents that result in swelling and bleeding — specifically in the abdomen — can lead to more life-threatening conditions like abdominal compartment syndrome (ACS). What…

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abdominal compartment syndrome in children

Caring for Your Child’s G-Tube

Parenthood is one of the toughest jobs you’ll ever experience. The hours can be long, the monetary pay is nonexistent, and your clients have a ton of needs – yet despite all of that, parenthood is worth it. The look your child gives you as you hold them, the way they curl up in your…

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caring for childs g-tube

A Little Boy with a Big Personality

Melony Robinson is the mom to an adorable three-year-old, E.R., who was born with Trisomy 21. She first heard of Sonas through a social worker who was helping her find assistance to care for her baby. “He had a kidney transplant, which required a lot of close monitoring,” explains Melony as she sits down to…

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A Little Boy with a Big Personality

Miracle Baby Gets a Miracle Nurse

For many people, the birth of a child is a happy occasion. For Angelly Rivera, it was a heartbreaking experience. Her baby, A.M. was born at 23 weeks of gestation, weighing 1 lb., 6 oz., with a long list of health complications. She spent several months in the neonatal intensive care unit (NICU). During this…

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Miracle Baby Gets a Miracle Nurse

Caring for a Child with Cystic Fibrosis (CF)

Receiving any kind of diagnosis that affects your child’s vital organs can be devastating. Such is the case with cystic fibrosis. The condition has no cure and makes breathing more difficult, so it can make caring for a child feel challenging – and sometimes overwhelming. In order to learn how to best care for a…

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Caring for a Child with Cystic Fibrosis