Blog

Caregivers

From Micro Preemie to Disney Fan

A.K. is a fun-loving little girl who loves music. She could spend the entire day listening to the Frozen and Moana soundtracks, as well as nursery rhymes. At almost four years of age, she’s also very perceptive. Even though she has four nurses as home caregivers and loves all of them, she’s well-aware that she…

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From Micro Preemie to Disney Fan

What is a Pulse Oximeter?

When a loved one has been diagnosed with a serious medical condition, you have to take some time to process the information — deal with the shock and assimilate how it’s going to change your life and the life of your loved one. In addition, you have to become familiarized with an entirely new vocabulary. This…

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What is a Pulse Oximeter?

Fun Activities for Children with Limited Mobility

Having a child at home means being hyper-vigilant around the clock. You want to make sure that they’re bathed, fed, and safe. You want to ensure their wellbeing, and that they feel loved. And, if you have a child with limited mobility, you want them to feel like they have as normal a childhood as…

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8 Fun Activities for Children with Limited Mobility

Caregiver Stress Management

As a caregiver, you’re responsible for taking care of loved ones, answering questions, and juggling tasks while remaining put together and positive. It’s a lot to handle, and sometimes the stress of the day can be overwhelming — especially amidst a global pandemic like COVID-19. You know that stress can be detrimental to your health,…

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Caregiver Stress Management

Born To Be a Nurse

Iris Ten is a nurse and home health caregiver of 8-year-old J.G. They met in May 2019, when J.G.’s mom looked for someone to help her take care of her son, who has muscular dystrophy, is non-verbal, and has a tracheostomy. J.G. is homeschooled and his mom stays at home with him all day to…

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Iris Ten, Sonas Nurse

Pediatric Vasculitis

Receiving a medical diagnosis for a serious health condition can feel frightening and overwhelming. The feelings are multiplied when the person with the disease is your child. What does it all mean? How did it happen? What does treatment entail? All these questions rush through your mind as you try to accept this new reality…

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Pediatric Vasculitis

Caring for a Child after a Liver Transplant

Finding out your child needs an organ transplant can make you feel overwhelmed, anxious, and helpless. But, between the moment a donor has been found through surgery, things may seem to happen too fast to stop and really think about them. It’s once you’re ready to go home that this new reality sinks in. What…

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Caring for a Child after a Liver Transplant

Caring for a Child After a Kidney Transplant

Having a child who needs to undergo surgery is an overwhelming — and often heartbreaking — experience. You want to do everything under the sun to protect your little one. Make them comfortable, ensure their health, and provide the best care possible. So, once they come out of that operating room, you want to know…

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Caring for a Child After a Kidney Transplant

Hypoxemia: Low Blood Oxygen

Serious medical diagnoses always come with a long list of worries — what do all the medical terms mean? What caused the illness in the first place? What will this affect your life? Is there anything you can do to make things better? Such is the case when patients first hear of the term hypoxemia. Other than…

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Hypoxemia Low Blood Oxygen

Caring for a Child with Duchenne’s Muscular Dystrophy

One of the most unfair things about life is receiving a dire medical diagnosis for a child. It’s heartbreaking at any age, but it feels almost sinister when it relates to someone who’s just starting their life. And if the diagnosis is for a lesser-known condition, you’re left with a million questions. What does Duchenne’s…

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Caring for a Child with Duchenne’s Muscular Dystrophy